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Today I got to Kangaroo Care with Jack, it's a skin to skin method of holding the baby. it was GREAT!!!

Jack had a great week so it wasn't surprising when I talked to his nurse today and found out he started having quite a few more episodes of forgetting to breathe, but she suctioned him out and he got better. I met with his neurosurgeon this week to find out that there is more fluid on his brain so Monday morning (tomorrow) they are going to do another head ultrasound to see if it's increasing, decreasing or staying the same. If it increases Tuesday at 7:30 am he will have to undergo surgery for a temporary shunt that will be replaced once he's almost 4 pounds which would be about 2 weeks after he has his intestinal surgery to reconnect his intestines. I am praying it will either stay the same or lessen. But God is in control and whatever His will is He will get us through it. Good news is that his hemorrhaging or blood on the brain is resolving itself. They tried to take him off the C-Pap (or larger respirator) to put him on the nasal cannula (smaller respirator) but he decided he still wanted help so they put him back on the C-Pap. He seems to need the extra pressure but the breathing portion is at a 12 so it's barely helping him to breath. They may try again in a few days to take him off of it.

This week was a great week for me caring for him, I got to give him a bath, help with changing the colostomy bag, held him in my hands 2x's and today got to Kangaroo care him, which is skin to skin his tummy on me. It was wonderful and it's supposed to be really healing for him and help him grow. I do have to say it's really healing to me as well. The nurses are also letting me help out a lot more when I am there, I love it!!!

On average he gains 10 - 20 grams a night last night he gained a whole ounce for a whopping 2 pounds 4 oz, he's doing so well and each day they up his feedings .5 ml for a total today of 4mls an hour for him, they feed him 4mls an hour for 3 hours and then off an hour and begin again. They check to see how much he's digested and so far he's digesting most of it. Last night I saw how much he's filling out, he's getting pudgier which is weird to see but really nice. I've gotten use to how lean and skinny and long he's looked but now he's putting fat on his bones and looking great, more like a smaller sized full term baby now.

Us, we are all hanging in there... Isabelle is keeping way busy this summer and Paul is doing well although this week he pulled his sciatic nerve so had to take it slower this week than usual. Me, I'm exhausted but hanging in there but I'm in good spirits.

Thanks again for all your prayers and support!!! God Bless you all and please if you have people who are praying for us pass this news on the them and give them a big Thank You to them as well.

last year at 5:30 we had a little surprise, my water broke and we rushed off to the hospital. At 13.5 weeks early our son decided it was time for him to make his entrance! At 8:35pm by methods of an emergency c-section Jack Dayton was born into this world weighing in at 1# 13.9 oz with a length of 13”. He was in NICU for 100 days for the first visit and many returns since to the hospital with a grand total of 20 surgeries. He was so tiny and looked so fragile, his skin was still translucent in spots and we had a long road ahead. At 6 days old I was allowed to kiss his head for the first time as they wheeled him down for his first surgery that found the holes in his intestines. This was the scariest moment of our life as we were told if the intestines were bad enough they would sew him back up and send him home to die. At a month old his second surgery for the hydrocephalus took place after the bleeding on his brain dried up and we’ve had many complications and revisions since. It's been a long journey but we have been surgery free for 3.5 months!

Today on his birthday, he weighs a whopping 20# and is 27.5”. His chubbiest feature is his cheeks as he is a strong and solid little boy. He loves his family and sissy so very much and you can see it in his eyes and hear it in his squeals. He is a very happy, content and easygoing child. He has physical therapy with professionals several times a week and daily with mom to work on his motor skills and take care of his Torticollis (a condition in which the head is tilted toward one side and the chin is elevated and turned toward the opposite side). He wears a helmet 18 hours a day to fix the shape of his head. Other than that he is perfectly healthy! At this time he is not rolling over or sitting on his own and nowhere near crawling but that will take time to develop. Once his neck muscles strengthen that will take care of these issues. However, he is an eater he eats at his real age and not his gestational age. Once he was allowed to eat in NICU he never turned back he is quite advanced in this area and never ceases to amaze people.

When he was discharge from NICU the first time the nurses told us that he wasn’t expected to live longer than 2 weeks and that our positive attitude and our love is what kept him going. We were prepared for Cerebral Palsy and him being a vegetable for the rest of his life. Trust me we would have taken it just to have our baby alive! Thanks to God and our Faith and the prayers of our loved ones and people we’ve never met our little Miracle is here today, cleared of cerebral palsy and in great health. I PRAISE GOD IN HEAVEN for our MIRACLE daily! Our life has changed for the better over this past year and we wouldn’t trade one minute of it.