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morgellons images
NIH retracts "delusional" from Morgellons Rare Diseases Webpage - Lionsgate Forums NIH retracts "delusional" from Morgellons Rare Diseases Webpage getting rid of discrimination and preventing civil-rights-violations against morgellons patients...
One website at a time...Subject: RE: Morgellons diseaseDate: Thu, 31 May 2007 22:28:09 -0400From: ".Gard (Genetic and Rare Diseases Information morgellons images Dear Mr.
Thank you for your recent e-mail to the Genetic and Rare Diseases (GARD)Information Center about the rare disease term 'Morgellons disease' onthe Office of Rare Diseases (ORD) Web site.
Thank you for sharing yourconcerns about the strategy that was used to search the PubMed databasefor articles about this condition.
We originally tried to use thewidest search strategy to locate as many articles with abstracts aspossible.
We understand your concerns about this strategy andapologize.
We immediately changed the search strategy for PubMed to"Morgellons" as suggested in your e-mail.Thank you again.Sincerely,Janine AddamsInformation SpecialistThe Genetic and Rare Diseases (GARD) Information CenterTelephone: 888-205-2311TTY: 888-205-3223Email: GARDinfo@nih.govFax: 202-966-5689Mail: PO Box 8126Gaithersburg, MD 20898-8126Original MessageDate: Mon, 28 May 2007 01:25:56 -0700To: GARDinfo@nih.gov, webmaster@nih.govSubject: Misinformation regarding 'morgellons' on NIH rare diseases website.Regarding 'Morgellons Disease' athttp://rarediseases.info.nih.gov/asp...fo.asp?ID=9805The Pubmed link on the above URL, performs a completely inappropriate search:http://www.ncbi.nlm.nih.gov/entrez/q...ract%5Btext%5DThe search prejudges Morgellons as delusional with the following query embeddedin the URL:(delusional[All Fields]AND (("parasitic diseases"[TIAB] NOT Medline[SB])OR "parasitic diseases"[MeSH Terms]OR parasitosis[Text Word] ))AND hasabstract[text] )It morgellons images premature, foolish, and completely wrong-headed for a government websiteto be presenting misinformation that ultimately leads to patient human rightsviolations, as well as discrimination.
People are going to their doctors with areal disease, and based on a significant amount of misinformation and "spin,"these patients' life-threatening medical issues are being ignored, treatment isrefused, and incredible suffering ensues.
Unfortunately, NIH's "rare diseases"site promote this form discrimination by prematurely and prejudiciallyassuming that the condition is delusional, despite significant evidence to thecontrary.
The CDC, which has been taking reports on this condition for over 10years, has done nothing, other than claim to have begun a task-force on theissue -- yet they do not take a position that Morgellons is delusional.August medical societies, such as theInternational Lyme and Associated Diseases Society, recognize this as a realdisease, in distinction from delusional parasitosis:http://www.ilads.org/morgellons.html .
ILADS has recognized that a significantproportion of Morgellons sufferers also show signs of Lyme Disease, and this isbacked up by Western-blot tests indicating active infection with the Borreliaspirochete.Many Lyme-disease experts consider Morgellons to be a co-infection orcomplication of Lyme disease -- a real disease, and not a delusion.
The factthat laboratory evidence of disease exists for these sufferers should rule out adelusional diagnosis.
However, the prejudices promoted by your website ensurethat patient complaints will not be taken seriously, and clinical signs ofinfection will be missed, simply because doctors are refusing to even run anytests.
After all, why should they, the morgellons images Pubmed search for Morgellons givesSEVENTY articles on delusions.
Buried in the misinformation are a small handfulof articles suggesting it is a real disease.Please correct this inaccuracy at once.
It is totally inappropriate and illegalfor a federal government organization to be promoting morgellons images againstsufferers of a particular medical condition.
The misinformation presented on theNIH website threatens the civil rights of patients and promotes discrimination.To fix problem, simply search Pubmed for "Morgellons" and completelyeliminate "delusional parasitosis" from the query:http://www.ncbi.nlm.nih.gov/entrez/q...ct%5Bt morgellons images you for your consideration,NielsPS: you may be getting more calls and letters on this:http://lymebusters.proboards39.com/i...d=1179601 876>
Topic: NIH listing for morgellons ->
"delusional" (Read 192 times)>
Niels> Senior Member>
...> The NIH "rare listing for morgellons>
Http://rarediseases.info.nih.gov/asp...fo.asp?ID=9805>
Has a link to a pubmed search for the following:>>
(delusional[All Fields]>
AND> (> ("parasitic diseases"[TIAB] NOT Medline[SB])>
OR "parasitic diseases"[MeSH Terms]>
OR parasitosis[Text Word]>
)> )> AND hasabstract[text]>>>
Quote:>> Please Note: Additional information on this disease may be available from the Genetic and Rare Diseases Information Center.
Information specialists can provide free assistance in obtaining the information you need.
The Information Center is supported by the Office of Rare Diseases in partnership with the National Human Genome Research Institute, both of the National Institutes of Health.
The Genetic and Rare Diseases Information Center can be reached at 888-205-2311, 888-205-3223 (TTY), or by e-mail morgellons images Morgellons disease>
Synonyms:> Morgellon's disease>>>
NOTE: To learn more or report suspected cases, call the Centers for Disease Control and Prevention (CDC) Morgellons information and voice mail line at 404-718-1199.>>
Information about Morgellons disease is available from:>>
NLM Gateway The NLM Gateway allows users to search across multiple resources offered on the National Library of Medicine's Web site.
Some of these resources may be duplicated in the list of links below.
Click on the link to go to the NLM Gateway, and search by condition name.>>
PubMed Logo PubMed lists journal articles that discuss Morgellons disease.
Click on the link to go to PubMed and review citations to these articles.>>>>
Note that had the NIH search actually searched for 'morgellons' itself, at least some articles>
On the "parasite/real-disease" side come out:>>
Quote:>> 1: Paquette M.
Related Articles, Links>
No abstract Morgellons: disease or delusions?>
Perspect Psychiatr Care.
2007 Apr;43(2):67-8.
No abstract available.>
PMID: 17388848 [PubMed - in process]>
2: Harvey WT. morgellons images Articles, Links>
No abstract Morgellons disease.>
J Am Acad Dermatol.
2007 Apr;56(4):705-6.
No abstract available.>
PMID: 17367622 [PubMed - indexed for MEDLINE]>
3: Koblenzer CS. Related Articles, Links>
No abstract The challenge of Morgellons disease.>
J Am Acad Dermatol.
2006 Nov;55(5):920-2.
Review. No abstract available.>
PMID: 17052516 [PubMed - indexed for MEDLINE]>
4: Waddell morgellons images Burke WA.
Related Articles, Links>
No abstract Morgellons disease?>
J Am Dermatol.
2006 Nov;55(5):914-5.
No abstract available.>
PMID: 17052510 [PubMed - indexed for MEDLINE]>
5: Murase JE, Wu JJ, Koo J.
Related Articles, Links>
No abstract Morgellons disease: a rapport-enhancing term for delusions of parasitosis.>
J Am Acad Dermatol.
2006 Nov;55(5):913-4.
No abstract available.>
PMID: 17052509 [PubMed morgellons images for MEDLINE]>
6: Koblenzer CS. Related Articles, Links>
No abstract Pimozide at least as safe and perhaps more effective than olanzapine for treatment of Morgellons disease.>
Arch Dermatol. 2006 Oct;142(10):1364.
No abstract available.>
PMID: 17043201 [PubMed - indexed for MEDLINE]>
7: Marris E. Related Articles, Links>
No abstract Mysterious 'Morgellons disease' prompts US investigation.>
Nat Med. 2006 Sep;12(9):982.
Epub 2006 Aug 30.
No abstract morgellons images 16960559 [PubMed - indexed for MEDLINE]>
8: Savely VR, Leitao MM, Stricker RB.
Related Articles, Links>
Abstract The mystery of Morgellons disease: infection or delusion?>
Am J Clin Dermatol.
2006;7(1):1-5. Review.>
PMID: 16489838 [PubMed - indexed for MEDLINE]>
...> « Reply #2 on May 19, 2007, 11:53am »>
Some real gems hidden in DOP land:>>
Human Gongylonema infection in a resident of New York City.>
* Eberhard ML,>
* Busillo C.>
Division of Parasitic Diseases, Centers for Disease Control and Prevention, Atlanta, Georgia 30341-3724, USA.>>
A case of infection with Gongylonema is described in a 41-year-old woman living in New York City.
The patient sought medical attention with the complaint of a sensation of 1-year duration of something moving in her mouth.
On two occasions she removed worms from her mouth, once from her lip, once from the gum.
One of the specimens submitted for examination was an adult female Gongylonema.
It is not possible to say whether the infection was acquired in New York City, or since the patient traveled frequently to Mississippi to visit relatives.
As cases of delusional parasitosis continue to increase, clinicians and laboratorians alike need to be alert to the possibility that foreign objects removed from the mouth, or elsewhere, may indeed represent unusual parasitic infections, and that these objects should be examined before being discarded.
Last edited by niels : 06-01-2007 at 05:49 PM.
Sound familiar? "IDSA merely offers psychiatric labels to "chronic Lyme" patients in another thread I posted a link: http://www.the-scientist.com/news/home/49605/( State official subpoenas infectious disease group Connecticut's attorney general probes whether the professional society’s Lyme disease guidelines violate antitrust laws )One of the replies to the article is excellent.
This is relevant because mostmorgellons sufferers have Lyme (if tested/diagnosed correctly) and yetprevaliing mainstream attitude is to say Chronic Lyme is "all in your head."PLEASE READ THE FOLLOWING (except for you smileykinds...
We already know you think that"chronic lyme" is a hoax and you've probably said nasty things about Schalleralready on morgellonswatch because he believes morgellons is real( http://www.morgellonsmd.com/articles.html )Quote: Last edited by niels : 06-06-2007 at 06:02 PM.
morgellons images MorgellonsWatch denialists Look what MorgellonsWatch says about Michael.5 Responses to â€SOccam’s Garden”http://morgellonswatch.com/2007/06/1...rden/#commentsJune 13’th at 12:23 amThe owner of Morgellons Watch is â€SMichael Computer Engineer”Can anybody help to get a hold of him for me?Once Mary Barr, "Smileyskins" said that she took a hot shower after steaming it up pretty good and fibers started pouring out everywhere.
She said that's what made morgellons images better.
Yes, she used to post lots stuff Lymebusters, that's what she said.Now she says that people are delusional who have fibers.
Last edited by Roberta : 06-20-2007 at 08:03 PM.
morgellons images MorgellonsWatch denialists Once Rick Grove, or rather TallCotton said that he broke open fibers, and that little things like dominoes and traffic lights spilled out of them all over the place.It's really sad that now they say they know it all.
They even know more than researchers who have never did drugs or never been to jail like they have.
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